A small sampling of our accomplishments to date in the hepatitis C community include:
Native American Hepatitis C Program: Building awareness and tribal leader support for addressing hepatitis C in Native American communities across the U.S.
Voices Project: In partnership with Story Corps we are memorializing patient experiences with hepatitis C that are saved in the Library of Congress archives. These stories give new hope to patients
The Hepatitis Leadership Corps (HLC), established in 2014, is a fellowship program aimed at training at least two health policy advocates within each state.
HepCCATT/ECHO: The Hepatitis C Community Alliance to Test & Treat is a 4-year CDC funded program awarded to The University of Chicago. The Caring Ambassadors Program is a subcontracted partner within the project serving multiple roles including attendance at all ECHO trainings serving as Addiction Consultant, and an active member in community organizing and advocacy efforts.
Greenlighting HCV Series: The Greenlight series provides guidance and information for step-by-step development of hepatitis C testing, patient identification, linkage-to-CURE, and long-term support for those affected by hepatitis C and the people who care for them. The series is available for download on our website.
Women in High Places (WIHP): In 2016, the Caring Ambassadors Program partnered with Innovara, a healthcare consulting company, to expand their Women in High Places (WIHP) program to include a women and hepatology component. Together we spearheaded a collaboration of 38 international women to focus on women’s health and hepatitis. We will be recruiting a woman in every region of the world to share in common goals and visions to help the world eliminate hepatitis.
The Caring Ambassadors Program continues to work with national partners and various stakeholders, including the Hepatitis Appropriations Partnership, and our longstanding relationship with the National Viral Hepatitis Roundtable (NVHR) where the Caring Ambassadors has served on the Executive Committee for the past 10 years.
Establishment of Liver Cancer Roundtable
A small sampling of our accomplishments to date in the lung cancer community include:
Lung Cancer Choices, 3rd Edition was launched on November 1, 2016. We are proud of the recent update and excited about all the new therapies available for those diagnosed with lung cancer in the last couple of years. Lung Cancer Choices is written by leading experts in the field from around the Country.
Caregiver Choices is a resource for all those who find themselves in the role of caregiver for someone who has been diagnosed with lung cancer. The book was written by Dr. Ann Broderick who directs the first Hospice and Palliative Medicine fellowship at the University of Iowa, together with Cindy Langhorne. Dr. Broderick has been a tireless champion of patient and family education, as she feels that patients can collaborate best with their health care teams when they are informed.
Empowered! My Journey – My Choices was written by Jessica Steinberg, a lung cancer survivor who writes about her determination to be a surTHRIVEr. Jessica is a hero of the Caring Ambassadors Program and works actively on our Board of Directors.
The Native American Network held a webinar, Tuesday, November 22, 2016 titled “Lung Cancer Screening in Indian Country” presented by Kris Rhodes, MPH, Executive Director, American Indian Cancer Foundation; Abbie Begnaud, MD, Assistant Professor of Medicine, University of Minnesota Health, Lung Cancer Screening Program Leader; Cindy Langhorne, Caring Ambassadors Program; and Patrick Roberts, Health Policy Fellow, National Native American AIDS Prevention Center Partnered with Caring Ambassadors Program.
Cindy Langhorne participated as an author on the International Association for the Study of Lung Cancer (IASLC) poster entitled “Quality of Life and Patient Reported Outcome Measures for Lung Cancer Patients; Treatment Outcomes, and Patient Management.” The poster will be presented at the IASLC 17th World Conference on Lung Cancer December 4-7, 2016 in Vienna, Austria.
Cindy Langhorne is the co-chair, LungCAN. The Lung Cancer Action Network (LungCAN®) is a collaborative group of lung cancer advocacy organizations that have come together to raise public awareness about the realities of lung cancer. Our intention is to increase funding for detecting, treating and curing the disease.
American Society of Clinical Oncology (ASCO) member.
International Association for the Study of Lung Cancer (IASLC) member.
EmergingMed Lung Cancer Clinical Trials Call to Action partner since December 2000, EmergingMed has guided more than 170,000 patients through a search for cancer clinical trials.
Washington State Senate – Senator Andy Hill introduced and passed Washington State Senate Resolution 8678 on February 10, 2014 at the request of the Caring Ambassadors Program stating the Senates commitment to making lung cancer a public health priority by supporting advocacy work on behalf of lung cancer patients, those at risk, and the general public. Sadly, Senator Hill passed away from the disease on October 31, 2016.